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Living With Special Needs

I am feeling the frustration of having a special needs child and no one to help. I have a neurologist, a psychiatrist, a psychologist, a psycho therapist, a behavior specialist, and a TSS. Then why do I feel this way?

He has been diagnosed with Epilepsy and ADHD. They are looking at Asperger's. He is out of control. He is having break through seizures. His seizures are nocturnal which means he is not getting good REM sleep. This in turn causes his ADHD to go off the chart. He can't have medication for the ADHD because those medicines cause seizures, which he is already having.

And so round and round we go. Oh, by the way, my sleep is interrupted by the seizures also.
So, I tell my "support staff" and they just look at me like I'm the crazy one. I have a diary. I have kept it for 4 years. They read it once in awhile. Nothing happens.
Just wondering if anyone is listening!!

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